Tuesday, August 5, 2008

By the grace of God, all of your prayers, and the strong spirit of Faith, she is almost at 75% of her pre-accident function. At the moment Faith seems to see but has large blind spots, particularly at knee level. However, her neurological opthamologist appointment went well and the doctor said with proper rehabilitation she could regain her full sight.

Faith is moving pretty well around the house these days. She struggles with coordination and has the bruises to show it, but she rarely shows frustration. Her desire to be independent is always present. She is now able to bend down and stand up on her own, something she could not do just one week ago.

Please continue to keep Faith in your thoughts and prayers.

Tuesday, July 22, 2008

T Shirts for Faith are now available for $20.
Front design to the left. Back reads:
Keep Your Friends by Your Side and
Faith in your Heart

Colors are: pink shirts with white printing or grey shirts with navy blue printing. All sizes are available.

T Shirts courtesy of Uncle Charles DeFranza and Ascot Printing. Design courtesy of Carol Bataglia and Anca Studios.

Contact August Leming or Maureen Leming to order.


Monday, July 21, 2008

Please Note: Faith's hospital case worker has recommended that the Morelli Family change the legal name of Faith's Fund to The Morelli Special Needs Trust Fund. The reason for this change is to ensure that Faith is able to remain a beneficiary of Medicaid. Were she to have significant funds in her name, she could lose this critical medical benefit. The nature of the non profit already requires the family to use the funds only and specifically for Faith's care. This will not change. However, we would like the family to be able to continue receiving Medicaid and to only use monies raised to close the remaining financial gaps and costs incurred through Faith's medical treatment and rehabilitation.

Saturday, July 12, 2008

Faith is doing very well at home with her family. She goes to the hospital several times a week for therapy for hours a t a time, and on the off days, she does therapy with her teachers at home. She works so hard! She is standing on her own for short periods of time and takes more steps everyday. She is even eating well - three meals a day of semi-solid food.

The doctors say her trache is in good shape, no swelling of which to speak. She will return to Ohio in August for a check up. If all goes well, from then on she will be able to work exclusively with doctors in Philadelphia - a much easier commute for the whole family! She will be seeing a neuro-opthamologist at the end of the month for an important assessment of her vision. Please keep her in your prayers!

Everyone is looking forward to a great golf outing on August 25th! Thank you Modern Electric for sponsoring our event. Players are still needed! For more information, please e-mail aleming@sourcenj.com or mleming@hunschool.org.

Tuesday, July 1, 2008

Change of plans ... Faith is home to stay! From now on, faith will continue therapy on an out-patient basis. The family could not be happier. It is quite a challenge to meet her needs as well as transport her back and forth daily from home, but it is certainly worth it to have her sleeping in her own bed again.

faith is eating some things again, like macaroni and cheese and in general is making slow but important progress every day.

Tuesday, June 24, 2008

Faith is home in New Jersey tonight after a successful trip to Ohio. She is still trached to keep her airway open. The trache prevents her from eating or talking, but it is not permanent.

She will return to Children's Hospital in New Brunswick for a period of about three weeks. There, she will continue a schedule of rigorous rehabilitation therapy for her neurological and muscular health. After approximately three weeks, we are told that she will likely be allowed to come home and continue therapy on an out-patient basis.

From now on, Faith will be working with a team of doctors out of Children's Hospital of Philadelphia (CHOP). It is our hope that this will make further travel to Ohio unnecessary.

Thank you for all of your support and prayers.

Don't forget to register to play golf for Faith!

August 25th ... Registration information to the right.

Saturday, June 21, 2008

Faith is doing quite well in Ohio. She is adjusting to her new trache physically and seems to have accepted it emotionally as well. She misses beinbg able to speak, but understands that everyone hopes that will be possible soon. We heard that tonight, she was able to walk the halls of the hospital a while with Peter only holding onto her lightly.

Lorraine and Peter have been told they may be able to bring Faith home Monday or Tuesday of next week. If so, they will be traveling thanks to the Angel Network, which has offered to pay for their return flight. Once home, Faith will undergo rigorous out-patient therapy at Children's Specialized Hospital five days a week.